Keywords
Social Media
Internet-Based Intervention
Learning Health System
Self Care
How to Cite
Abstract
This article seeks to describe the evidence on social networks as informal online networks aimed at people with tracheostomy, intestinal ostomy and their caregivers, providing evidence of how online Communities of Practice (CPo) could use social networks, supported self-care apps and videos. An integrative review was carried out in all six stages, with a timeline search between 2010 and 2021 in the LILACS, PUBMED, CINAHL, SCOPUS and Web of Science databases. After analyzing 314 articles, the 17 articles included in the sample were explored in 4 categories, still using the framework of the social scientist Étienne Wenger, who coined the term CPo. Thus, there were only informal networks and not communities of practice, nor synchronous use of technological resources in them, so community patterns were sought in existing informal networks, considering the benefits generated for people with ostomy and caregivers when accessing videos, applications and software from future communities of practice. Finally, the seven principles to cultivate them for the profile studied are exposed, relying on the existing informal networks and a research agenda around this unexplored nationally and internationally.
References
Hill B. Stoma care: procedures, appliances and nursing considerations. Br J Nurs. 2020;29(22):S14-S19. https://doi.org/10.12968/bjon.2020.29.22.S14
Patton J. Tracheostomy care. Br J Nurs. 2019;28(16):1060-1062. https://doi.org/10.12968/bjon.2019.28.16.1060
Khalilzadeh Ganjalikhani M, Tirgari B, Roudi Rashtabadi O, Shahesmaeili A. Studying the effect of structured ostomy care training on quality of life and anxiety of patients with permanent ostomy. Int Wound J. 2019;16(6):1383-1390. https://doi.org/10.1111/iwj.13201
Brito LEÓ, Fé ÉM, Galiza FTD, Carvalho REFL, Melo GAA, Pereira FGF. Plano de alta de enfermagem para estomizados intestinais. Rev enferm UFPE on line. 2019;1-7. https://doi.org/10.5205/1981-8963.2019.239794
Dalmolin A, Girardon-Perlini NMO, Coppetti LDC, Rossato GC, Gomes JS, Silva MEN. Vídeo educativo como recurso para educação em saúde a pessoas com colostomia e familiares. Rev gaúch enferm. 2016;37. https://doi.org/10.1590/1983-1447.2016.esp.68373
Crawford D, Texter T, Hurt K, VanAelst R, Glaza L, Vander Laan KJ. Traditional nurse instruction versus 2 session nurse instruction plus DVD for teaching ostomy care: a multisite randomized controlled trial. J Wound Ostomy Continence Nurs. 2012;39(5):529-537. https://doi.org/10.1097/WON.0b013e3182659ca3
Correa Júnior AJS, Mendes CP, Pastana EN, Sonobe HM, Teles AAS, Santana ME. Múltiplos sentidos após a estomização: implicações para o início da socialização de pessoas com câncer colorretal. Cogit Enferm. (Online). 2021;26. http://dx.doi.org/10.5380/ce.v26i0.72932
Corazza MJ, Rodrigues JL, Della Justina LA, Vieira RM. Comunidades de prática como espaços de investigação no campo de pesquisa formação de professores. Rev Pesq Qualitativa [Internet]. 2017 [acesso em 22 set 2022];5(9):466-494. Disponível em: https://editora.sepq.org.br/rpq/article/view/138/95
Rodrigues MU, Silva LD, Miskulin RGS. Conceito de Comunidade de Prática: um olhar para as pesquisas na área da Educação e Ensino no Brasil. REMat [Internet]. 2017 [acesso em 22 set 2022];14(16):16-33. Disponível em: https://www.revistasbemsp.com.br/index.php/REMat-SP/article/view/31/pdf
Ferreira ADA, Silva BDD. Comunidade de prática on-line: uma estratégia para o desenvolvimento profissional dos professores de História. Educ rev. 2014;30(1):37-64. https://doi.org/10.1590/S0102-46982014000100003
Wang QQ, Zhao J, Huo XR, Wu L, Yang LF, Li JY, Wang J. Effects of a home care mobile app on the outcomes of discharged patients with a stoma: A randomised controlled trial. J Clin Nurs. 2018;27(19-20):3592-3602. https://doi.org/10.1111/jocn.14515
Bedra M, Wick E, Brotman D, Finkelstein J. Avatar-based interactive ileostomy education in hospitalized patients. ICIMTH. 2013;83-85. https://doi.org/10.3233/978-1-61499-276-9-83
Whiteley I, Khatri S, Butler S. Reflections on a bowel cancer support group 6 years from inception. Journal of Stomal Therapy Australia. 2019;39(3):12-15. https://doi.org/10.33235/jsta.39.3.12-15
Wenger E, Wenger-Trayner B. Comunidades de práctica una breve introducción. trad. Aguilar DG, Texeira C. Proyecto Educación y Nuevas Tecnologías [Internet]. PENT; 2015 [acesso em 22 set 2022]. Disponível em: http://www.pent.org.ar/sites/default/files/institucional/publicaciones/Breve%20introduccio%CC%81n%20a%20las%20comunidades%20de%20pra%CC%81ctica.pdf
Ipiranga ASR, Menezes RBD, Matos JLL, Maia GLL. Aprendizagem como ato de participação: a história de uma comunidade de prática. Cad. EBAPE.BR. 2005;3(4):01-17. https://doi.org/10.1590/S1679-39512005000400009
Moura GL. Somos uma comunidade de prática?. Rev Adm Pública. 2009;43(2):323-346. https://doi.org/10.1590/S0034-76122009000200003
Wenger E. Communities of Practice and Social Learning Systems. Organization. 2000;7(2):225–246. https://doi.org/10.1177/135050840072002
Saxena RC, Lehmann AE, Hight AE, Darrow K, Remenschneider A, Kozin ED, Lee DJ. Social media utilization in the cochlear implant community. J Am Acad Audiol. 2015;26(02):197-204. https://doi.org/10.3766/jaaa.26.2.8
Al Mamun M, Ibrahim HM, Turin TC. Peer reviewed: social media in communicating health information: an analysis of facebook groups related to hypertension. Prev Chronic Dis. 2015; 12:e11. http://dx.doi.org/10.5888/pcd12.140265
Mendes KDS, Silveira RCDCP, Galvão CM. Revisão integrativa: método de pesquisa para a incorporação de evidências na saúde e na enfermagem. Texto & contexto enferm. 2008;17:758-764. DOI: https://doi.org/10.1590/S0104-07072008000400018
Romanowski JP, Ens RT. As pesquisas denominadas do tipo “estado da arte” em educação. Rev Diálogo Educ [Internet]. 2006 [acesso em 22 set 2022];6(19):37-50. Disponível em: https://periodicos.pucpr.br/index.php/dialogoeducacional/article/view/24176
Soares CB, Hoga LAK, Peduzzi M, Sangaleti C, Yonekura T, Silva DRAD. Revisão integrativa: conceitos e métodos utilizados na enfermagem. Rev Esc Enferm USP. 2014;48:335-345. https://doi.org/10.1590/S0080-6234201400002000020
Page MJ, McKenzie JE, Bossuyt PM, Boutron I, Hoffmann TC, Mulrow CD et al. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ 2021; 372:n71. https://doi.org/10.1136/bmj.n71
Wenger E, McDermott R, Snyder WM. Seven principles for cultivating communities of practice. Cultivating Communities of Practice: a guide to managing knowledge [Internet]. Clear Watervic; 2002 [acesso em 23 ago 2021]. Disponível em: https://www.clearwatervic.com.au/user-data/resource-files/7Principles_Community-of-Practice.pdf
MELNYK, BM, FINEOUT-OVERHOLT E. Evidence-based practice in nursing & healthcare: A guide to best practice. Lippincott Williams & Wilkins; 2011.
Rademacher MA. “The most inspiring bikini photos you’ll see this summer”: A thematic analysis of mass audiences’ interpretations of ostomy selfies. New Media Soc. 2018;20(10):3858-3878. https://doi.org/10.1177/1461444818761876
Frohlich DO, Zmyslinski-Seelig AN. How Uncover Ostomy challenges ostomy stigma, and encourages others to do the same. New Media Soc. 2016;18(2):220-238. https://doi.org/10.1177/1461444814541943
Madan G, Stadler ME, Uhrich K, Reilly C, Drake AF. Adolescents with tracheostomies—communications in cyberspace. Int J Pediatr Otorhinolaryngol. 2011;75(5):678-680. https://doi.org/10.1016/j.ijporl.2011.02.012
Meyer‐Macaulay CB, Graham RJ, Williams D, Dorste A, Teele SA. “New Trach Mom Here…”: A qualitative study of internet‐based resources by caregivers of children with tracheostomy. Pediatr Pulmonol. 2021;56(7), 2274-2283. https://doi.org/10.1002/ppul.25355
Huestis MJ, Kahn CI, Tracy LF, Levi JR. Facebook group use among parents of children with tracheostomy. Otolaryngol Head Neck Surg. 2020;162(3):359-361. https://doi.org/10.1177/0194599820901528
Silva BWAC, Araújo AKD, Medeiros MBC, Melo VL, Sena JF, Costa IKF. Análise de vídeos de autocuidado no YouTube sobre troca de bolsas de estomias intestinais. Rev Rene. 2020;21:60. https://doi.org/10.15253/2175-6783.20202144275
Rosa BVCD, Girardon-Perlini NMO, Gamboa NSG, Nietsche EA, Beuter M, Dalmolin A. Desenvolvimento e validação de tecnologia educativa audiovisual para famílias e pessoas com colostomia por câncer. Texto & contexto enferm. 2019;28: e20180053. https://doi.org/10.1590/1980-265X-TCE-2018-0053
Oliveira Stragliotto D, Girardon-Perlini NMO, Rosa BVC, Dalmolin A, Nietsche EA, Somavilla IM, Silva MEN. Implementação e avaliação de um vídeo educativo para famílias e pessoas com colostomia. Estima (Online). 2017;15(4). https://doi.org/10.5327/Z1806-3144201700040002
Halemani K, Shashidhara YN, D’Souza SR. An Evaluative Study to Assess the Effectiveness of a Video-Assisted Teaching Module on Knowledge and Practice Regarding Home-Based Colostomy Care of Children Among Primary Caregivers in Selected Hospital Lucknow, Uttar Pradesh. Indian J Surg Oncol. 2021;12(1):146-151. https://doi.org/10.1007/s13193-020-01268-3
Dabas H, Sharma KK, Joshi P, Agarwala S. Video teaching program on management of colostomy: Evaluation of its impact on caregivers. J Indian Assoc Pediatr Surg. 2016;21(2):54. https://doi.org/10.4103/0971-9261.176933
Xia L. The effects of continuous care model of information-based hospital-family integration on colostomy patients: a randomized controlled trial. J Cancer Educ. 2020;35(2):301-311. https://doi.org/10.1007/s13187-018-1465-y
Cherney RL, Pandian V, Ninan A, Eastman D, Barnes B, King E et al. The trach trail: a systems-based pathway to improve quality of tracheostomy care and interdisciplinary collaboration. Otolaryngol Head Neck Surg. 2020;163(2):232-243. https://doi.org/10.1177/0194599820917427
Farahani MA, Dorri S, Yousefi F. Design and validation of education multimedia program for patients with fecal diversions: A quality improvement project to enhance self-care. J Wound Ostomy Continence Nurs. 2020;47(1):39-44. https://doi.org/10.1097/WON.0000000000000603
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
Copyright (c) 2022 Global Academic Nursing Journal