Keywords
Hematology
Caregivers
Home Nursing
Nursing
How to Cite
Abstract
The aim of this study was to identify the difficulties faced and the strategies used in home management by caregivers of patients undergoing treatment for hematological malignancies, during the COVID-19 pandemic. This is a qualitative study, carried out with 20 caregivers in a reference hospital in oncology. Data were analyzed using Content Analysis, supported by Bardin's theoretical framework. Most respondents were female, married, with at least high school education and living in the Southeast region. In addition, 70.0% were spouses or children, who had taken care of the patient continuously for less than two years, but had no training in the health area. From the content analysis of the interviews, three categories emerged: difficulties related to care; difficulties related to access; and coping strategies. Ignorance of management in the face of the changes imposed by the COVID-19 pandemic in the routine care of patients with hematological neoplasia is part of the caregiver's daily life. The main coping strategies used are related to family and spiritual support. Therefore, it is necessary to develop educational strategies to improve the care provided and empower the family to solve these problems.
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