Abstract
The aim was to understand the adaptive strategies used by people with spinal cord injuries when performing toilet transfers and managing their neurogenic bladder. This was a descriptive study with a qualitative approach, supported by Adaptive Nursing. Seventeen community-dwelling individuals with paraplegia were included and interviewed. Qualitative data were processed using appropriate software, using content analysis. Two categories emerged: adaptive strategies for toilet transfer performance and Adaptive strategies for managing their neurogenic bladder, both inside and outside the home, even when faced with the threat of contamination. Participants are left unassisted in the community due to a lack of guidance on the safe performance of these procedures, improvising their strategies with available resources. Some have not even had access to rehabilitation programs, nor have any connection with them, as well as with primary health care services, which compromises their health and quality of life in the short, medium, and long term. In this sense, nurses can be decisive in assuming a leadership role in the care of these people, as they work in the various spheres of health services where they are treated.
References
World Health Organization (WHO). Spinal cord injury. [Internet]. 2020 [cited 2023 Sep 14]. Available from: https://www.who.int/news-room/fact-sheets/detail/spinal-cord-injury
Iunes EA, Onishi FJ, Costa HRT, Azuaga TL. Efect of the until descompression on neurologic recovery after spinal cord injury. Braz J Med Biol Res. 2022;21(3):e265129.
Silva HF, Figueiredo NMA, Martins MM, Ribeiro OMPL, Faleiros F, Machado WCA. Habilidades nas transferências para desempenho das atividades cotidianas de pessoas com lesão da medula espinal. Enferm Foco. 2024;15:e-202467.
Li J, Li QP, Yang BH. Participatory continuous nursing using the WeChat platform for patients with spinal cord injuries. J Int Med Res. 2021;49(5):1-7.
Alve YA, Bontje P. Factors influencing participation in daily activities by persons with spinal cord injury: lessons learned from an international scoping review. Top Spinal Cord Inj Rehabil. 2021;25(1):41-61
Rodrigues CVC, Leffer A, Chesani FH, Mezadri T, Lacerda LLV. Functional independence profile of people with physical disabilities. Fisioter Mov. 2019;32:e003226.
Wang SY, Hong, SR, Tan JY. Five Different lives after suffering from spinal cord injury: the experiences of nurses who take care of spinal cord injury patients. Int J Environ Res Public Health. 2022;19(3):1058.
Ruiz AGB, Barreto MS, Paiano M, Pupulim JSL, Decesaro MN, Marcon SS. Experiências de (in)acessibilidade vivenciadas por pessoas com lesão medular. Rev eletr enferm. 2018; 20(8) e2058.
Bourbeau D, Bolon A, Creasey G, Dai W, Fertig B, French J, et al. Needs, priorities, and attitudes of individuals with spinal cord injury toward nerve stimulation devices for bladder and bowel function: a survey. Spinal Cord. 2020;58(11):1216-26
Krebs J, Wöllner J, Rademacher F, Pannek J. Bladder management in individuals with spinal cord injury or disease during and after primary rehabilitation: a retrospective cohort study. World J Urol. 2022; 40:1737-42.
Crescenze IM, Myers JB, Lenherr SM, Elliott SP, Welk B, O´Dell D, et al. Predictors of low urinary quality of life in spinal cord injury patients on clean intermittent catheterization. Neurourol Urodyn. 2019;38(5):1332-38.
Tsai CY, Boninger ML, Bass SR, Koontz AM. Upper-limb biomechanical analysis of wheelchair transfer techniques in two toilet configurations. Clin Biomech. 2018;55:79-85.
Roy C. The Roy Adaptation Model. New Jersey: Prentice Hall Health; 2009.
Shirozhan S, Arsalani N, Seyed BMS, Mohammadi-Shahboulaghi F. Barriers and facilitators of rehabilitation nursing care for patients with disability in the rehabilitation hospital: A qualitative study. Front Public Health. 2022;10:931287.
Kirchherr J, Charles K. Enhancing the sample diversity of snowball samples: recommendations from a research project on anti-dam movements in Southeast Asia. PLoS One. 2018;13(8):e0201710.
QRS. Nvivo. Versão Nvivo Pro 12 for Windows 2018 [Software]. [Internet]. 2017 [cited 2023 Feb 25] Available from: http://www.qsrinternational.com/nvivo-portuguese
Bardin L. Análise de conteúdo. Lisboa: Edições 70; 2016.
Clares JWB, Guedes MVC, Freitas MC. Construção de diagnósticos de enfermagem para pessoas com lesão medular em reabilitação. Rev esc enferm USP. 2021;55:e03750.
World Health Organization (WHO). Assistive technology. [Internet]. 2023 [cited 2023 Jun 14]. Available from: https://www.who.int/news-room/fact-sheets/detail/assistive-technology
Machado WCA. Enfermagem de reabilitação: Uma questão de demanda da sociedade e lacuna no âmbito da saúde coletiva e enfermagem internacional. Enferm Bras. 2023;22(1):1-5.
Lynn A, Worobey LA, Rigot SK, Boninger ML, Huzinec R, Sung JH, et al. Concurrent validity and reliability of the transfer assessment instrument questionnaire as a self-assessment measure. Arch Rehabil Res Clin Transl. 2020;2(4):100088.
Gemperli A, Rubinelli S, Zanini C, Huang J, Brach M, Pacheco Barzallo, D. Living situation of family caregivers of persons with spinal cord injury. J Rehabil Med. 2020;52(11):1-10
Jeyathevan G, Cameron JI, Craven BC, Munce SEP, Jaglal SB. Re-building relationships after a spinal cord injury: experiences of family caregivers and care recipients. BMC Neurol. 2019;19(1):1-13.
Gutenbrunner C, Stievano A, Nugraha B, Stewart D, Catton H. Nursing - a core element of rehabilitation. Int Nurs Rev. 2022 ;69(1):13-9.
Mansoor SN, Rathore FA. Bladder management practices in spinal cord injury patients: A single center experience from a developing country. J Spinal Cord Med. 2018;42(6):786-90.
Del Popolo G, Antonucci L. Disability and sustainability: reusable versus single-use catheters for persons with neurogenic bladder due to spinal cord injury. Spinal Cord Ser Cases. 2020; 6(1):1-3.
New PW. The evidence supporting single-use intermittent catheters in people with spinal cord injury. Spinal Cord Ser Cases. 2020; 6(1):89.
Patel DP, Herrick JS, Stoffel JT, Elliott SP, Lenherr SM, Presson AP, et al. Reasons for cessation of clean intermittent catheterization after spinal cord injury: results from the neurogenic bladder research group spinal cord injury registry. Neurourol Urodyn. 2020;39(1):211-9.
Gutenbrunner C, Stievano A, Stewart D, Catton H, Nugraha B. Role of nursing in rehabilitation. J Rehabil Med Clin Commun. 2021; 4,1-2.

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